I don't even know why I am passing along this story - except for the fact that it is so beautifully written - written to the point that you can feel the pain so intensely - and when I was done reading it, I said a little prayer to God and thanked Him for what He has given us. I went upstairs and kissed my babies. I stroked Mason's soft cheeks and tucked Makayla's hair behind her ear. It's stories like this that help to remind me how blessed I am.
After reading this story, you can find out more about Amy at Transplanted Thoughts.
Here are some ways that Amy has been described:
"Amy has lived through more unspeakable sadness than many of us can even begin to imagine. Her story is unfathomable and overwhelming. Her story inspires and brings hope.Her story exemplifies survival and optimism. To say that she is strong diminishes her. To say that she is brave doesn’t begin to cover it. Amy is a survivor…she is truly remarkable."
That morning
As you can imagine, this was a difficult post to write, I’ve gone back and forth about whether or not to post it. It deals with the morning David died and it’s raw. Raw and emotional and I thought it best to say so, upfront, just in case you’re not up to shouldering some of the hurt. Because there’s a lot of hurt.
It had been a long night. Ever since he had aspirated the blood on Saturday morning, he had been having episodes of decreased oxygenation and increased levels of CO2.
His lungs were no longer working properly.
There had been talk of the oscillator, but they had tried to hold off as long as possible. By 6am, they couldn’t wait any longer. There was no choice left but to put him on life support.
At that point, I knew with the utmost certainty that I would lose my Capt Snuggles.
I just didn’t know it would be within the next 6 hours.
The oscillator is a horrible apparatus, it is a piston based machine that creates constant motion. It caused David’s entire body to vibrate non-stop. It was a jarring presence in the peaceful atmosphere I tried so hard to hold on to.
By 8:30am he was having some drops in blood pressure and heart-rate, something he’d been doing sporadically. They needed to place an arterial line and start support meds for his heart. Everyone was very calm, business as usual.
I hadn’t left to take a shower the day before, so I left to go to the RMH for a quick shower and maybe a bite to eat. I’d only gotten 2 hours of sleep – I needed a boost for the day ahead.
At 9:10, just as I was getting ready to leave the RMH, one of the nurses called and said the words I wasn’t prepared for “I think you need to come back, now.”
I ran.
I dodged through the people in the concourse, I swept past the guards stationed in front of the elevators – by now they no longer asked for proof that I was allowed up – and I’m sure with my wild-eyed, frantic appearance – they knew I needed to hurry through.
I tried to catch my breath in the elevator, I was scared and alone. I knew I may have to face this all by myself – my husband was an hour and a half away. I took a deep breath and walked into the throng of people that had gathered outside our room.
I knew when I saw our transplant coordinator, this was it.
She offered to call my husband and I let her, I knew I couldn’t find the words to tell him he needed to be here, now.
I watched as they worked over him, the images are so firmly etched in my head that I see them whenever I close my eyes. I’d seen them bag him before, but never with the urgency I saw at that moment. The Attending doctor pulled me into the hallway to talk. Ironically this is the same Attending that admitted us, all those months ago. We hadn’t seen him since.
He explained to me that there comes a time to decide. To differentiate between doing things for him and doing things to him. We were no longer doing things for him. I understood and all I could say was, My husband’s not here, can we hang on until he arrives?
Then he coded.
His heart stopped. I replay the words over and over again in my head, his heart stopped and then suddenly, with an increased frenetic pace, the Attending began chest compressions. Again and again and again, I wanted to shout Enough! Enough already! Please stop! But I didn’t. I let them continue, his
Daddy wasn’t there and I couldn’t let him go by myself.
Some how, they brought him back. Not David, not really, not my Capt Snuggles. I think he took flight the minute his heart stopped. But they kick-started his heart and kept blowing air into his lungs until his Daddy arrived.
Which he did shortly, by now it was almost 11am. The doctors gathered and ushered us into a small conference room. They said everything I already knew. I looked at each one of them telling me all these things and it didn’t matter.
It didn’t matter that they all loved him, because I’m sure that they did. It didn’t matter that they did the best they could, because I know that they tried. It didn’t matter that they thought I was a good mother, because I still couldn’t change the outcome. None of what they said mattered.
All I could think of was that in a few minutes I would be allowed to finally hold my son and it would be the last time, and it wouldn’t be enough.
It would never be enough.
We returned to the room. They brought in a rocking chair and I held him. I held him while that awful oscillator vibrated and vibrated and vibrated and finally, I told my Hub to get the nurse – I was ready, I
They came. The drips keeping his heart pumping were stopped. That awful machine was turned off and they removed the breathing tube from his nose. I was finally able to look at my sweet boys’ face without the tape and tubes.
He was finally free of it all.
And I held him.
I held him when the Attending came in to listen for his heartbeat. I held him when the Attending called out 12:15. I held him while they left us alone and I cried. I cried for all the hurt and pain that he had endured. I cried for all the lost hope and the pure senselessness of the whole situation. I cried for the boy that would never grow old and I cried for the emptiness and brokenness that would haunt me for the rest of my days.
I cried until I thought I was empty and then I cried some more, just like a cut that starts to clot, but if you bump it, it starts to bleed again.
I thought that I may never stop bleeding.
Finally, I laid David back on the bed and I covered him with his blanket. Our Chaperone came in and asked if I would like to help her bathe him.
And I did.
Before we bathed him, we took imprints of his feet and hands, both on a heart shaped mold and on paper. I trimmed a lock of his hair to keep tucked away.
Then we washed all traces of blood and tears away from Capt Snuggles. We rubbed baby lotion on his arms and legs and his sweet face, just like he was getting ready for sleep. We dressed him and wrapped him in his blanket.
I bent down and kissed his forehead, more tears than I ever thought possible, streaming down my face.
I had to leave, it was more than time. It may very well be the hardest thing I’ve ever had to do. To put one foot in front of the other and walk out of that hospital room. To walk out and leave my Capt Snuggles behind.
To walk out and leave my heart behind.
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